Topic: dementia
“Transformation happens when someone feels safe and seen and heard. And when people are recognized as who they are rather than what they’re living with or a diagnosis they’ve been given,” reflects Tami Sandygren, Care Manager.
Tami’s insights in this week’s Wisdom Wednesday podcast provide a thoughtful exploration of personhood, purpose, and ways to honor choice.
In his book Dementia Reconsidered: The Person Comes First (1997), Tom Kitwood first defined personhood in dementia as “a standing or status that is bestowed upon one human being by others in the context of particular social relationships and institutional arrangements. It implies recognition, respect, and trust.”
Personhood in dementia is concerned with treating people living with dementia with dignity and respect, in a manner that supports their sense of self. It focuses on treating the person living with dementia as a person first and foremost. Supporting personhood in dementia is the key goal of person-centered care.
Adapting to a family member’s memory changes gives you and your family a lot to think about. Our Certified Care Managers are experts at helping families make sense of and navigate the changes that come with Alzheimer’s and other dementias. CLICK HERE to schedule a call today to plan your best path forward.
Additional Resources
As we grow older, we all experience cognitive change. Our brain, like the rest of our body, naturally changes as we age. Changes in cognition can be subtle and most changes are normal. Misplacing keys or taking longer than usual to recall a person’s name or a word are common examples. There are times, however, when we notice changes that are consistent, repetitive, and may suggest cognitive impairment. …
Don’t Go Down the River of Denial; Recognize the SignsRead More »
Image courtesy of Allyson Valentine Schrier
Last month, our colleague Wendy looked at the difference between Alzheimer’s and dementia. One of the types of dementia Wendy listed was Frontotemporal Dementia, or FTD.
Frontotemporal Dementia (FTD) is not well-known, but it’s been in the news recently. In February, the family of much-beloved actor Bruce Willis announced that he was diagnosed with FTD.
A year earlier he had been diagnosed with aphasia, a condition that affects the ability to speak and to understand language. The symptoms have since progressed and are no longer limited to difficulty with communication, leading to his more recent diagnosis of FTD.
What is Frontotemporal Dementia or Disorders (FTD)? …
Actor Bruce Willis has Frontotemporal Dementia (FTD). What is FTD?Read More »
It’s not unusual to hear the terms dementia and Alzheimer’s used interchangeably, though they are not synonymous; they have different meanings. Dementia is an umbrella term that describes a broad range of symptoms; dementia is a syndrome, not a disease. Dementia is a decline in cognitive function that is typically not reversible. …
What’s the difference between dementia and Alzheimer’s disease?Read More »
A lack of insight or awareness is when a person living with a form dementia or a brain injury is unable to recognize changes in their behavior and emotions.
Adult children may interpret this as a parent being difficult or in denial. However, the part of the brain that is damaged, often by Alzheimer’s, Lewy Body dementia, or a stroke, is what is affecting the individual’s inability to see these changes. It is related to loss of activity in areas in the front of a person’s brain, known as the frontal lobes. …
It is probably one of the toughest conversations you’ll ever have: you would rather talk about finances and death with your parents than ask them to retire the car keys.
Why is it so hard? Americans prize self-sufficiency. Driving is deeply connected to our sense of independence and freedom. On the practical side: without a car, your parents will have trouble getting places. Opportunities to socialize will be tricky too.
Though an emotionally charged topic, it’s counterproductive to postpone tough conversations. Keep in mind, it’s more important to avoid accidents or death than to avoid talking about unpleasant and difficult topics. …
Many of us look forward to holiday gatherings – getting together with family and friends, sharing lively conversation and good food, exchanging gifts, treats, and merrymaking.
But for someone living with Alzheimer’s disease or another form of dementia, all the activity, the people, and associated noise can be very unsettling. …
Making the holidays more inclusive and meaningful for those living with dementiaRead More »
Caring for someone living with Alzheimer’s, another dementia, or Parkinson’s, whether it’s a spouse or parent, can be stressful, and at times, overwhelming, even on a good day. Too much stress can be harmful to you both. It’s also not uncommon for family caregivers to be so concerned with the needs of the person in their care that they lose sight of their own well-being. …
This article was first published July 15, 2022 and updated October 27, 2022
The Midterm elections are just around the corner. The Washington State Voters’ Pamphlet arrived in mailboxes last week. Ballots were mailed October 21. Election Day is Tuesday, November 8, 2022. For information about elections in Washington State, visit the Washington State Secretary of State website page HERE.
Whenever an opportunity to vote is on the horizon, our team often fields questions from family members and other supports about voting when the person in our mutual care is living with a cognitive impairment. …
The Right to Vote and Cognitive Impairment (updated)Read More »
Last week we looked at tips for navigating long-term care options to support living at home. Successfully managing care at home depends on many factors, including finances, health status, transportation, mobility, a supportive physical environment, a willingness to accept care, and having a realistic view of the care needs.
There may come a point when the person in your care can no longer be safely and adequately cared for at home. For example, when your parent has a progressive health condition such as Alzheimer’s disease or Parkinson’s, there may come a time when the care needed at home exceeds your capacity to support them safely.
Be prepared for this reality; it’s never too early to research, visit, and reflect in preparation for a possible move. It’s always best to be proactive. …
Navigating Long-Term Care Options (in greater Seattle) Part IIRead More »